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‘Walk with Me’: Reflections from a Motor Neurone Disease Care Advisor

Leanne Bodley

Abstract


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Keywords


Accompaniment, comprehensive support, consolation, MND advisors, motor neurone disease, person-centered healthcare

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References


Mannix, K. (2017). With the End in Mind; Dying, Death and Wisdom in the Age of Denial. pp 61-68. London: Harper Collins.

Aoun, S.M., Hogden, A. & Kho, L.K. (2018). “Until there is a cure, there is care”: A person-centered approach to supporting the wellbeing of people with Motor Neurone Disease and their family carers. European Journal for Person Centered Healthcare 6 (2) 320-328.

Aoun, S. (2018). The palliative approach to caring for motor neurone disease: from diagnosis to bereavement. European Journal for Person Centered Healthcare 6 (4) 675-684.

Miles, A. & Asbridge, J.E. (2019). On the need for person-centered approaches to the care of patients living with motor neurone disease. A Commentary on Aoun, S. et al. (2018) EJPCH 6 (2) 320-328 & Aoun, S. (2018) EJPCH 6 (4) 675-684. European Journal for Person Centered Healthcare 7 (1) 205-210.

Miles, A. & Asbridge, J.E. (2016). The chronic illness problem. The person-centered solution. European Journal for Person Centered Healthcare 4 (1) 1-5.




DOI: http://dx.doi.org/10.5750/ejpch.v7i3.1743

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