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Can a web-based tailored decision aid ‘stand alone’ for 65plus patients with localized prostate cancer?

Jessie Schrijvers

Abstract


Objectives: A pilot study was designed to examine the feasibility of a web-based DA and its included technology features, considering treatment choice for patients between 65 and 75 with localized prostate cancer.

 

Patients and method: Twenty-nine patients, that had already been treated for localized prostate cancer, participated at an oral survey with close-ended questions about their internet use, the barriers and opportunities when accessing a web-based DA, their impression on the use of incorporated technology features and their preference for the booklet or the online DA version. Data were analyzed using non-parametrical statistics.

 

Results: Participants with low internet use and without internet access at home preferred the booklet DA or a combination of both booklet as well as web-based format. Patient characterized as regular internet users with internet access at home preferred the web-based DA version and extensively used the tailoring component. The usage of other technology features such as value clarification tool and comparative tables was high while the use of the scientific information was limited.

 

Conclusion: An online DA is a useful tool in a decision making process for patients characterized as frequent internet users with internet access at home, also in an older patient population. 


Keywords


Shared decision making; decision aid; web-based

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References


Jemal A, Center MM, DeSantis C & Ward, EM (2010). Global patterns of cancer incidence and mortality rates and trends. Cancer Epidemiology Biomarkers & Prevention, 19(8), 1893-1907.

Wilt, J., MacDonald, R., Rutks, I., Shamliyan A., Tatyana A., Brent, C.T., Lake, R (2008). Systematic review: Comparative effectiveness and harms of treatment for clinically localized prostate cancer. Annals of Internet Medicine;148: 435-448

Hegarty, J., Beirne, P.V., Comber, H., Wallace, M. Watchful waiting versus prostatectomy for prostate cancer (protocol). 1-8. 2008. John Wiley & Sons. The Cochrane Collaboration.

Coulter, A., & Collins, A. (2011). Making shared decision-making a reality. No decision about me, without me. The King’s Fund.

O’Connor A M, Stacey D (2005) Should patient decision aids (PtDAs) be introduced in the health care system? Copenhagen, WHO Regional Office for Europe (Health Evidence Network report; http://www.euro.who.int/Document/E87791.pdf, accessed 18 November 2005).

.Hoffman A, Volk R, Härter M; Li L, Llewellyn-Thomas H, Saarimaki A, Stirling, C. (2012). Delivering decision aids on the Internet in Volk R & Llewellyn-Thomas H (editors). 2012 Update of the International Patient Decision Aids Standards (IPDAS) Collaboration’s Background Document. Chapter H. http://ipdas.ohri.ca/resources.html.

Kreps, G. L. (2010). New directions in eHealth communication: Opportunities and challenges. Patient education and counseling 78(3): 329.

Tait, A. R., Voepel-Lewis, T., Brennan-Martinez, C., McGonegal, M., & Levine, R. (2012). Using Animated Computer-generated Text and Graphics to Depict the Risks and Benefits of Medical Treatment. The American Journal of Medicine

Stacey D, Bennett CL, Barry MJ, Col NF, Eden KB, Holmes-Rovner M, Llewellyn-Thomas H, Lyddiatt A, Légaré F, Thomson R. Decision aids for people facing health treatment or screening decisions. Cochrane Database of Systematic Reviews 2011,Issue 10. Art. No.: CD001431. DOI: 10.1002/14651858.CD001431.pub3.

Frosch DL, Kaplan RM, Felitti VJ (2003). A randomized controlled trial comparing internet and video to facilitate patient education for men considering the prostate specific antigen test. Journal of Generals Internal Medicine, 18 (10):781-7.

Frosch DL, Bhatnagar V, Tally S, Hamori CJ, Kaplan RM. (2008) Internet Patient Decision Support: A Randomized Controlled Trial Comparing Alternative Approaches for Men Considering Prostate Cancer Screening. Arch Intern Med.168(4):363-369. doi:10.1001/archinternmed.2007.111

Simon, D., Kriston, L., von Wolff, A., Buchholz, A., Vietor, C., Hecke, T., ... & Härter, M. (2011). Effectiveness of a web-based, individually tailored decision aid for depression or acute low back pain: A randomized controlled trial. Patient education and counseling, 87, 360-368..

N. Joseph-Williams, R. Evans, A. Edwards, R.G. Newcombe, P. Wright, R. Grol et al (2010). Supporting informed decision making online in 20 minutes: an observational web-log study of a PSA test decision aid J Med Internet Res, 12, p. e15.

Jaja C, Pares-Avila J, Wolpin S, Berry D (2010). Usability evaluation of the interactive Personal Patient Profile-Prostate decision support system with African American men. J Natl Med Assoc. 102(4):290–7

Sawka, A.M., Straus, S., Gafni, A. et al. (2010) A usability study of a computerized decision aid to help patients with early stage papillary thyroid carcinoma in decision making on adjuvant radioactive iodine treatment. Patient Education and Counseling, Aug 21 [Epub ahead of print] PMID: 20732775.

Sivell, S, Edward A, Manstead ASR, Reed MWR, Caldon L, Collins K, Clements A, Elwyn G (2011). Increasing readiness to decide and strengthening behavioral intentions: Evaluating the impact of a web-based patient decision aid for breast cancer treatment options (Bresdex: www.bresdex.com) Patient education and counseling, 88, 2, 209-217.

E. Mathieu, A.L. Barratt, K. McGeechan, H.M. Davey, K. Howard, N. Houssami (2010) Helping women make choices about mammography screening: an online randomised trial of a decision aid for 40 year old women Patient Educ. Couns., 81 (1), pp. 63–72

Dorfman C, Williams R, Kassan E, Red S, Dawson D, Tuong W, Parker E, Ohene-Frempong J, Davis K, Krist A, Woolf S, Schwartz M, Fishman M, Cole C, Taylor K (2010): The development of a web- and a print-based decision aid for prostate cancer screening. BMC Med Inform Decis Mak, 10:12

E. Wakefield et al (2011). Development and pilot testing of an online screening decision aid for men with a family history of prostate cancer Patient Education and Counseling, 83 (1), pp. 64–72

Reisenwitz, T. (2007). The elderly's internet usage: an updated look. The Journal of consumer marketing 24(7): 406.

Morris, A. (2007). E-literacy and the grey digital divide: a review with recommendations. Journal of information literacy, 2 (3), 13-28.

Wagner, N. (2010). Computer use by older adults: A multi-disciplinary review. Computers in human behavior 26(5): 870.

Zickuhr, K. & Madden, M. (2012) Older Adults and Internet Use, Pew Internet & American

Life Project, Washington, DC, [Online] Available at: http://pewinternet.org/Reports/2012/Older-adults-and-internet-use.aspx (26 October 2012).

Health topics In: Pew Internet and American Life Project. Washington, DC: Pew Research Center http://pewinternet.org/∼/media//Files/Reports/2011/PIP_HealthTopics.pdf Accessed January 4, 2013

Jones, S. and S. Fox. (2009). Generations Online in 2009. Washington, DC: Pew Internet & American Life Project.

Isebaert, S., Van Audenhove, C., Haustermans, K., De Ridder, K., Junius, S., Joniau, S., Van Poppel, H.Een beslissingshulp voor patiënten met gelokaliseerde prostaatkanker: eerste resultaten. Tijdschrift voor geneeskunde, 2007; 63: 15-21.

Isebaert, S., Van Audenhove, Ch., Haustermans, K., Junius, S., Joniau, S., De Ridder, K., Van Poppel, H (2008). Evaluating a Decision Aid for Patients with Localized Prostate Cancer in Clinical Practice. Urologia Internationalis; 81: 383-388.

Isebaert, S., Van Audenhove, C., Van Poppel, H., S. Junius, S. Joniau, K. De Ridder and K. Haustermans. The development and evaluation of a decision aid in the treatment of patients with localized prostate cancer. Radiotherapy and oncology, 2006;78: S41-S41 127 Suppl. 1.

Van Audenhove C, Haustermans K, Isebaert S, et al. Helping patients choose their treatment, Radiotherapy and oncology, 2006; 81: S15-S16 47 Suppl. 1.

Salkind, N. J. (2009). Statistics for people who (think they) hate statistics: EXCEL 2007 Edition. Sage Publications, Incorporated.

Elwyn, G., Lloyd, A., Joseph-Williams, N., Cording, E., Thomson, R., Durand, M. A., & Edwards, A. (2012). Option Grids: Shared decision making made easier. Patient Education and Counseling.

Bruine de Bruin, W., A. M. Parker, et al. (2012). "Explaining adult age differences in decision-making competence." Journal of Behavioral Decision Making 25(4): 352-360.

Xie, B. (2011). Effects of an eHealth literacy intervention for older adults. Journal of medical Internet research, 13(4).

Rains, S. A. (2008). Seeking health information in the information age: The role of Internet self-efficacy. Western Journal of Communication, 72(1), 1-18.




DOI: http://dx.doi.org/10.5750/ejpch.v2i4.841

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