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Carer-centred care: general practice support to family caregivers
Abstract
Rationale, aims and objectives
In February 2009 the UK’s Department of Health invited bids for funding to host demonstrator sites in order to test new approaches to working with and for carers within the national Carers’ Strategy [1; 2]. This paper discusses some of the findings of the local level evaluation of one of the host sites, situated in Northamptonshire.
Methods
A mixed-method approach was used to gather data from a range of participant groups. This paper presents the findings of two of those methods; a postal survey of carers and an audit of support offered by general practices.
Results
The findings of the evaluation show a considerable improvement in the extent to which carers’ roles were identified by their surgeries, however there is a need to ensure that this information is recorded and used in ways which benefit carers. Carers noted challenges in dealing with practice staff, particularly administrative staff who were not aware of their needs. Practices noted a range of services which were offered to carers, however carers were not always aware that these were available, suggesting that further publication of these opportunities is needed.
Conclusions
The paper argues the importance of the role undertaken by carers, and signals the range of ways in which General Practice can support or inhibit these activities.
References
HM Government (2008) Carers at the heart of 21st–century families and communities. The United Kingdom Carers Strategy. London: Department of Health.
CIRCLE (2011) New Approaches to Supporting Carers’ Health and Well-being: Evidence from the National Carers’ Strategy Demonstrator Sites programme (Final report). Available at: http://www.sociology.leeds.ac.uk/assets/files/Circle/new-approaches-report-jan-12.pdf Accessed: 18-09-12.
Fox, A. (2011) The Health Case for supporting carers. The Princess Royal Trust for Carers. Available from: http://static.carers.org/files/health-case-for-carer-support-jan09b-3928.doc. Accessed: 01-02-11.
Dearden, C. and Becker, S. (2004) Young Carers in the UK: The 2004 report. London: Carers UK.
Lawrence, V., Murray, J., Samsi, K. and Banerjee, S. (2008) Attitudes and support needs of black Caribbean, south Asian and white British carers of people with dementia in the UK. The British Journal of Psychiatry, 93, 240-246.
Niblett, P. (2010) Personal Social Services Survey of Adult Carers in England – 2009-10. The NHS Information Centre, Social Care.
Prior, L. (2003) Belief, knowledge and expertise: the emergence of the lay expert in medical sociology. Sociology of Health and Illness, 25, 41-57.
Shaw, J. and Baker, M. (2004) “Expert patient” – dream or nightmare? BMJ, 328, 723-724.
Department of Health (2010) The Handbook to the NHS Constitution. London: Department of Health.
Elwick, H. Joseph, S., Becker, S. and Becker, F. (2010) Manual for the Adult Carer Quality of Life Questionnaire (AC-QoL). The Princess Royal Trust for Carers/ The University of Nottingham.
Buckner, L. and Yeandle, S. (2005) Older carers in the UK. London: Carers UK.
National Coordinating Centre for the Service Delivery and Organisation (NCCSDO) research programme (2005) Briefing paper: Access to health care for carers. London: NCCSDO.
Greenwood, N., Mackenzie, A., Habibi, R., Atkins, C. and Jones, R. (2010) General practitioners and carers: a questionnaire survey of attitudes, awareness of issues, barriers and enablers to provision of services. BMC Family Practice, 11, 100.
Arksey, H., and Hirst, M. (2005) Unpaid carers’ access to and use of primary care services. Primary Health Care Research and Development, 6(2), 101-116.
Oyebode, J. (2003) Assessment of carers’ psychological needs. Advances in Psychiatric Treatment, 9, 45-53.
Kalra, L., Evans, A., Perez, I., Melbourn, A., Patel, A., Knapp, M. and Donaldson, N. (2004) Training carers of stroke patients: randomised controlled trial. BMJ, 328, 1-5.
van de Bovenkamp, H. M. and Trappenburg, M. J. (2010) The relationship between mental health workers and family members. Patient Education and Counselling, 80, 120-125.
Goodwin, A. and Happell, B. (2006) Conflicting agendas between consumers and carers: The perspectives of carers and nurses. International Journal of Mental Health Nursing, 15, 135-143.
Goodwin, A. and Happell, B. (2007) Consumer and carer participation in mental health care: The carer’s perspective: Part 2 – Barriers to effective and genuine participation. Issues in Mental Health Nursing, 28, 625-638.
Jones, R., Mackenzie, A., Greenwood, N., Atkins, C., and Habibi, R. (2011) General practitioners, primary care and support for carers in England: can training make a difference? Health and Social Care in the Community, 20(2), 128-136.
Manthorpe, J., Moriarty, J., Cornes, M., Hussein, S. and Lombard, D. (2013). On-line information and registration with services: patterns of support for carers in England. Working with Older People, 17(3), 125-129.
Jarvis, A. and Worth, A. (2005) Meeting carers’ information needs. Community Practitioner, 78(9), 322-326.
DOI: http://dx.doi.org/10.5750/ejpch.v2i4.823
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