Open Access
Subscription Access
Parent and staff perceptions of family-centred care in two Australian children’s hospitals
Abstract
Aim: This paper is a report of the comparison of perceptions of family-centred care by hospital staff (nurses, doctors and allied health staff) and parents of hospitalised children in two Australian tertiary paediatric hospitals.
Background: Family-centred care is an accepted approach to caring for children and their families in hospital. Previous publications have been inconsistent, ranging from promoting its benefits and integration into practice, reporting operational difficulties and proposing that family-centred care may not be working at all. An evaluation of the model of care is long overdue.
Method: A quantitative comparative cross-sectional survey was used to collect data in 2010 from a convenience sample of 309 parents of hospitalised children and 519 staff. Participants rated 20 items grouped into three subscales of respect, collaboration and support.
Findings: Both parents and staff responses were positive and parents had significantly higher subscale scores for respect, collaboration and support (all p<0.0001). Parents’ responses for 19 of the 20 items were significantly higher than for staff. The item on which parents and staff did not differ was concerned with being able to question recommendations about the child’s treatment.
Conclusion: Both parents and staff had positive perceptions of their family-centred care experiences. Parents’ perception of their experience was more positive than staff perceptions of their delivery of family-centred care in hospital. Whilst the positive experience by both consumers and healthcare providers is an important finding, reasons for differences, in particular in supporting parents, require further examination.Keywords
References
Shields, L,, Pratt, J. & Hunter, J. (2006). Family-centred care: a review of qualitative studies. Journal of Clinical Nursing 15 (10) 1317-1323.
Darbyshire, P. (1994). Living with a sick child in hospital: the experiences of parents and nurses. London: Chapman and Hall.
Foster, M., Whitehead, L. & Maybee, P. (2010). Parents’ and health professionals’ perceptions of family centred care for children in hospital, in developed and developing countries: A review of the literature. International Journal of Nursing Studies 47 (9) 1184-1193.
King, L. (2009). Family-centred care: a review of current literature. The Plymouth Student Journal of Health & Social Work 1, 9-17.
Power, N. & Franck, L. (2008). Parent participation in the care of hospitalized children: a systematic review. Journal of Advanced Nursing 62, 622-641.
Callery, P. (1997). Caring for parents of hospitalized children: a hidden area of nursing work. Journal of Advanced Nursing 26, 992-998.
Casey, A. (1995). Partnership nursing: influences on involvement of informal carers. Journal of Advanced Nursing 22, 1058-1062.
Coyne, I. (2003). Grounded Theory of Disrupted Lives: Children, Parents and Nurses in the Children's Ward. London: King's College University of London.
Coyne, I. (2008). Disruption of parent participation: nurses' strategies to manage parents on children's wards. Journal of Clinical Nursing 17 (23) 3150-3158. .
Shields, L. (1999). A comparative study of the care of children in hospital in developed and developing countries. Brisbane: The University of Queensland.
Palladelis, P., Cruickshank, M., Wainohu, D., Winskill, R. & Stevens, H. (2005). Implementing family-centred care: an exploration of the beliefs and practices of paediatric nurses. Australian Journal of Advanced Nursing 23, 31-36.
Institute for patient-and-family-centred care. (cited Dec 6, 2011). Available from: http://www.ipfcc.org.
Mikkelsen, G. & Frederiksen, K. (2011). Family-centred care of children in hospital – a concept analysis. Journal of Advanced Nursing 67 (5) 1152-1162.
Goodband, S. & Jennings, K. (1992). Parent care: a US experience in Indianapolis In: Caring for children in hospital: parents and nurses in partnership. (Cleary, J., ed.). London: Scutari Press.
McCann, D., Young, J., Watson, K., Ware, R.S., Pitcher, A., Bundy, R. & Greathead, D. (2008). Effectiveness of a tool to improve role negotiation and communication between parents and nurses. Paediatric Nursing 20 (5) 14-19.
Young, J., McCann, D., Watson, K., Pitcher, A., Bundy, R., & Greathead, D. (2006). Negotiation of care for a hospitalized child: parental perspectives. Neonatal, Paediatric and Child Health Nursing 9 (2) 4-13.
Young, J., McCann, D., Watson, K., Pitcher, A., Bundy, R., & Greathead, D. (2006). Negotiation of care for a hospitalized child: nursing perspectives. . Neonatal, Paediatric and Child Health Nursing 9 (3) 7-14.
Shields, L., Pratt, J., Davis, L. & Hunter, J. (2007). Family-centred care for children in hospital. Cochrane Database of Systematic Reviews. Issue No 1,(No: CD004811) DOI:10.1002/14651858.CD004811.pub2.
Galvin, E., Boyers, L., Schwartz, P., Jones, M., Mooney, P., Warwick, J. & Davis, J. (2000). Challenging the precepts of family-centered care: testing a philosophy. Pediatric Nursing 26, 625-632.
Hutchfield, K. (1999). Family-centred care: a concept analysis. Journal of Advanced Nursing 29 (5) 1178-1187.
Shields, L. & Tanner, A. (2004). Pilot study of a tool to investigate perceptions of family-centred care in different care settings. Pediatric Nursing 30 (3) 189-197.
Aggarwal, S., Chadha, P., Kalia, S., Richardson, S. & Winterbottom, L,L.S. (2009). Teaching research in paediatrics: a “hands on” experience for medical students. . Focus on health professional education: a multi-disciplinary journal 10 (3) 70-77.
Aggarwal, S., Chadha, P., Kalia, S., Richardson, S., Winterbottom, L. & Shields, L. (2009). Perceptions of family-centred care: a UK pilot study of the Shields and Tanner questionnaires. Neonatal, Paediatric & Child Health Nursing 12 (2) 25-29.
Shields, L., Mamun, A., Pereira, S., O’Nions, P. & Chaney, G. (2011). Measuring family centred care: working with children and their parents in a tertiary hospital. International Journal of Person Centered Medicine 1 (1) 155-160.
Hopia, H., Tomlinson, P., Paavillainen, E. & Stedt-Kurki, P. (2005). Child in hospital: family experiences and expectations of how nurses can promote family health. Journal of Clinical Nursing 14, 212-222.
Shields, L. & Coyne, I. (2006). Invited commentary on Hopia, Tomlinson, Paavilainen and Åstedt-Kurki 2004; Child in hospital: family experiences. Journal of Clinical Nursing 15, 111-113.
Shields, L. (2010). Questioning family-centred care. Journal of Clinical Nursing 19 (17-18) 2629-2638.
Mitchell, M., Chaboyer, W., Burmeister, E. & Foster, M. (2009). Positive Effects of a Nursing Intervention on Family-Centered Care in Adult Critical Care. American Journal of Critical Care 18 (6) 543-552.
Black, P., Boore, J. & Parahoo, K. (2011). The effect of nurse-facilitated family participation in the psychological care of the critically ill patient. Journal of Advanced Nursing 67 (5) 1091-1101.
The Australian Commission on Safety and Quality in Healthcare. (2010). Patient-centred care: improving quality and safety by focusing care on patients and consumers. (cited 10 October 2011). Available from: http://www.safetyandquality.gov.au/
Children’s Health Services. (2010). Royal Children’s Hospital Governance Framework. Part B: Integrated Planning Framework Strategy Development and Deployment Model.Brisbane: Children’s Health Services.
Princess Margaret Hospital for Children. (2006). Family Centred Care Nursing Care Standard. Paediatric Nursing Practice Manual. Perth: Princess Margaret Hospital for Children.
Aamodt, A. (1983). Problems in doing nursing research: Developing a criteria for evaluating qualitative research. Western Journal of Nursing Research 5 (4) 398-402.
Lynn, M. (1986). The determination and quantification of content validity. Nursing Research 35, 382-885.
Imle, M. & Atwood, J. (1988). Retaining qualitative validity while gaining quantitative reliability and validity: Development of the transition to parenthood concerns scale. Advances in Nursing Practice 11, 61-75.
Shields, L., Young, J. & McCann, D. (2008). The needs of parents of hospitalised children in Australia. Journal of Child Health Care 12 (1) 60-75.
Papastavrou, E., Efstathiou, G. & Charalambous, A. (2011). Nurses’ and patients’ perceptions of caring behaviours: quantitative systematic review of comparative studies. Journal of Advanced Nursing 67 (6) 1191-1205.
DOI: http://dx.doi.org/10.5750/ejpch.v1i2.665
Refbacks
- There are currently no refbacks.