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Increasing the person-centered care of people living with HIV (PLHIV). An analysis and commentary on ‘Treatment Challenges, Priorities, and Relationship with Healthcare Providers in HIV Care: A Cross-Sectional Survey of Portuguese Adults Living with HIV’. Antunes, A., Augusto, I., Parada, P., Okoli, C., Appiah, A. & de los Rios, P. (2020). European Journal for Person Centered Healthcare 8 (3) 282-293

Andrew Miles, Jonathan Elliot Asbridge

Abstract


No abstract

Keywords


Co- and Multi-Morbidity, ‘Fourth 90’, HIV, HIV Healthcare Providers, People Living with HIV (PLHIV), person-centered healthcare, Portugal, priorities, shared decision-making, treatment challenges, treatment options

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References


UNAIDS. (2014). 90–90–90. An ambitious treatment target to help end the AIDS epidemic. United Nations 2014. Available at: https://www.unaids.org/sites/default/files/media_asset/90-90-90_en.pdf.

World Health Organization. (2016). Draft global health sector strategy on HIV, 2016–2021. Available at: http://apps.who.int/gb/ebwha/pdf_files/WHA69/A69_31-en.pdf?ua=1.

Lazarus, J.V., Safreed-Harmon, K., Barton, S.E., Costagliola, D., Dedes, N., del Amo Valero, J., Gatell, J.M., Baptista-Leite, R., Mendão, L., Porter, K., Vella, S. & Rockstroh, J.K. (2016). Beyond viral suppression of HIV - the new quality of life frontier. BMC Medicine 14, 94.

Miles, A. (2017). From evidence-based to evidence-informed, from patient focused to person-centered – the ongoing ‘energetics’ of health and social care discourse as we approach the Third Era of Medicine. Journal of Evaluation in Clinical Practice 23 (1) 3-4.

Miles, A. & Asbridge, J.E. (2016). The chronic illness problem. The person-centered solution. European Journal for Person Centered Healthcare 4 (1) 1-5.

Miles, A. & Asbridge, J.E. (2017). Person-Centered Healthcare - moving from rhetoric to methods, through implementation to outcomes. European Journal for Person Centered Healthcare 5 (1) 1-9.

Miles, A. & Asbridge, J.E. (2019). The NHS Long Term Plan (2019) - is it person-centered? European Journal for Person Centered Healthcare 7 (1) 1-11.

Miles, A. (2020). Person-Centered Care as the New Professionalism - Raising the Bar from the Lower Denominator of Legally Acceptable Regulatory Competence to the Higher Numerator of Clinical Excellence. European Journal for Person Centered Healthcare 8 (1) 1-16.

Antunes, A., Augusto, I., Parada, P., Okoli, C., Appiah, A. & de los Rios, P. (2020). Treatment Challenges, Priorities, and Relationship with Healthcare Providers in HIV Care: A Cross-Sectional Survey of Portuguese Adults Living with HIV. European Journal for Person Centered Healthcare 8 (3) 282-293.

Bravo, P., Edwards, A., Rollnick, S. & Elwyn, G. (2010). Tough decisions faced by people living with HIV: a literature review of psychosocial problems. AIDS Reviews 12 (2) 76-88.

Lin, X., Wu, L. & Li, X. (2013). Community-based HIV/AIDS interventions to promote psychosocial well-being among people living with HIV/AIDS: A literature review. Journal of Aging Research Research 1, 31-46.

Vance, D.E. (2013). The cognitive consequences of stigma, social withdrawal, and depression in adults aging with HIV. Journal of Psychosocial Nursing and Mental Health Services 51, 18-20.

Do, A.N., Rosenberg, E.S., Sullivan, P.S., Beer, L., Strine, T.W., Schulden, J.D., Fagan, J.L., Freedman, M.S. & Skarbinski, J. (2014). Excess burden of depression among HIV‐infected persons receiving medical care in the United States: data from the medical monitoring project and the behavioral risk factor surveillance system. PLoS One 9, e92842.

Weinstein, T.L., & Li, X. (2016). The relationship between stress and clinical outcomes for persons living with HIV/AIDS: a systematic review of the global literature. AIDS Care 28, 160-169.

Einav, L. (2018). Psychosocial Aspects of HIV/AIDS. HIV and AIDS Research Journal 1:1.

Safreed-Harmon, K., Anderson, J., Azzopardi-Muscat, N., Behrens, G.M.N., d'Arminio Monforte, A., Davidovich, U., Del Amo, J., Kall, M., Noori, T., Porter, K. & Lazarus, J.V. (2019). Reorienting health systems to care for people with HIV beyond viral suppression. Lancet HIV 6 (12) e869-e877.

Remien, R.H., Stirratt, M.J., Nguyen, N., Robbins, R.N., Pala, A.N. & Mellins, C.A. (2019). Mental health and HIV/AIDS. The need for an integrated response. AIDS 33 (9) 1411-1420.

Altice, F., Evuarherhe, O., Shina, S., Carter, G. & Beaubrun, A.C. (2019). Adherence to HIV treatment regimens: systematic literature review and meta-analysis. Patient Preference and Adherence 13, 475.

de Los Rios P, Okoli, C., Punekar, Y., Allan, B., Muchenje, M., Castellanos, E., Richman, B., Corbelli, G. M., Hardy, W. D., Young, B. & Van de Velde, N. (2020). Prevalence, determinants, and impact of suboptimal adherence to HIV medication in 25 countries. Preventive Medicine 139, 106182.

Boretzki, J., Wolf, E., Wiese, C., Noe, S., Balogh, A., Meurer, A., Krznaric, I., Zink, A., Lersch, C. & Spinner, C.D. (2017). Highly specific reasons for nonadherence to antiretroviral therapy: results from the German adherence study. Patient Preference and Adherence 11, 1897-1906.

Carey, J.W., Carnes, N., Schoua-Glusberg, A., Kenward, K., Gelaude, D., Denson, D.J., Gall, E., Randall, L.A. & Frew, P.M. (2019). Barriers and facilitators for antiretroviral treatment adherence among HIV-positive African American and Latino men who have sex with men. AIDS Education and Prevention 31, 306-324.

Crim, S.M., Tie, Y’, Beer, L., Weiser, J. & Dasgupta, S. (2020). Barriers to Antiretroviral Therapy Adherence Among HIV-Positive Hispanic and Latino Men Who Have Sex with Men - United States, 2015-2019. Morbidity and Mortality Weekly Report 69, 1437-1442.

Schneider, J., Kaplan, S.H., Greenfield, S., Li, W. & Wilson, I.B. (2004). Better physician-patient relationships are associated with higher reported adherence to antiretroviral therapy in patients with HIV infection. Journal of General Internal Medicine 19, 1096-1103.

Land, L., Nixon, S. & Ross, J.D.C. (2011). Patient-derived outcome measures for HIV services in the developed world: a systematic review. International Journal of STD & AIDS 22 (8) 430-435.

Dang, B.N., Westbrook, R.A., Rodriguez-Barradas, M.C. & Giordano, T.P. (2012). Identifying drivers of overall satisfaction in patients receiving HIV primary care: A cross-sectional study. PLoS One 7 (8) e42980.

Pérez-Salgado, D., Compeán Dardón, S., Staines-Orozco, M. G. & Hernández, L.O. (2015). Satisfaction with Healthcare Services and Adherence to Antiretroviral Therapy among Patients with HIV Attending Two Public Institutions. Revista de Investigacion Clinica - Organo del Hospital de Enfermedades de la Nutricion 67 (2) 80-88.

Ahmed, S.I., Ramach, A., Ahmadi, K., Hasan, S.S. & Lee, C.K.C. (2015). Evaluation of patient satisfaction with HIV/AIDS care and treatment: a cross-sectional study. European Journal for Person Centered Healthcare 5 (1) 138-144.

Kall, M., Kelly, C., Auzenbergs, M. & Delpech, V. (2020). Positive Voices: The National Survey of People Living with HIV. Public Health England. Available at: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/857922/PHE_positive_voices_report_2019.pdf.

World Health Organization Regional Office for Europe. HIV/AIDS Surveillance in Europe 2019. Available at: https://www.euro.who.int/en/health-topics/communicable-diseases/hivaids/publications/2019/hivaids-surveillance-in-europe-2019.

Maggiolo, F., Ripamonti, D., Arici, C., Gregis, G., Quinzan, G., Antezana Camacho, G., Ravasio, L. & Suter, F. (2002). Simpler regimens may enhance adherence to antiretrovirals in HIV-infected patients. HIV Clinical Trials 3 (5) 371-378.

Roberts, K.J. (2004). Physician-patient relationships, patient satisfaction, and antiretroviral medication adherence among HIV-infected adults attending a public health clinic. AIDS Patient Care and STDs 16 (1) 43-50.

Godin, H., Côté, J., Naccache, H., Lambert, L.D. & Trottier, S. (2005). Prediction of adherence to antiretroviral therapy: a one-year longitudinal study. AIDS Care 17 (4) 493-504.

Carla Dias Barbosa, C. D., Balp, M-M., Kulich, K., Germain, N. & Rofail, D. (2012). A literature review to explore the link between treatment satisfaction and adherence, compliance, and persistence. Patient Preference and Adherence 6, 39-48.

Doyle, C., Lennox, L. & Bell, D. (2013). A systematic review of evidence on the links between patient experience and clinical safety and effectiveness. BMJ Open 3, e001570.

Shubber, Z., Mills, E.J., Nachega, J.B., Vreeman, R., Freitas, M., Bock, P., Nsanzimana, S., Penazzato, M., Appolo, T., Doherty, M. & Ford, N. (2016). Patient-Reported Barriers to Adherence to Antiretroviral Therapy: A Systematic Review and Meta-Analysis. PLoS Med 13 (11) e1002183.

Yu, Y., Luo, D., Chen, X., Huang, Z., Wang, M. & Xiao, S. (2018). Medication adherence to antiretroviral therapy among newly treated people living with HIV. BMC Public Health 18 (1) 825.

Leon, C., Koosed, T., Philibert, B., Raposo, C. & Schwartz Benzaken, A. (2019). HIV/AIDS health services in Manaus, Brazil: patient perception of quality and its influence on adherence to antiretroviral treatment. BMC Health Services Research 19, 344.

Kovarova, M., Benhabbour, S.R., Massud, I., Spagnuolo, R.A., Skinner, B., Baker, C.E., Sykes, C., Mollan, K.R., Kashuba, A.D.M., García-Lerma, J.G., Mumper, R.J. & Garcia, J.V. (2018). Ultra-long-acting removable drug delivery system for HIV treatment and prevention. Nature Communications 9 (1) 4156.

Kerrigan, D., Mantsios, A., Gorgolas, M., Montes, M.L., Pulido, F., Brinson, C., deVente, J., Richmond, G.J., Beckham, S.W., Hammond, P., Margolis, D. & Murray, M. (2018). Experiences with long acting injectable ART: A qualitative study among PLHIV participating in a Phase II study of cabotegravir + rilpivirine (LATTE-2) in the United States and Spain. PloS One 13 (1) e0190487.

Orkin, C., Arasteh, K., Hernández-Mora, M.G., Pokrovsky, V.B., Overton, E.T., Girard, P-M., Oka, S., Walmsley, S., Bettacchi, C., Brinson, C., Philibert, P., Lombaard, J., St. Clair, M., Crauwels, H., Ford, S.L., Patel, P., Chounta, V., D’Amico, R., Vanveggel, S., Dorey, D., Cutrell, A., Griffith, S., Margolis, D.A., Williams, P.E., Parys, W., Smith, K.Y. & Spreen, W.R. (2020). Long-Acting Cabotegravir and Rilpivirine after Oral Induction for HIV-1 Infection. New England Journal of Medicine 382, 1124-1135.

Currier, J.S. (2020). Monthly Injectable Antiretroviral Therapy - Version 1.0 of a New Treatment Approach. New England Journal of Medicine 382, 1164-1165.

Okoli, C., Brough, G., Allan, B., et al. (2020). Shared Decision Making Between Patients and Healthcare Providers and its Association with Favorable Health Outcomes Among People Living with HIV. AIDS and Behavior 1-12. Advance online publication. https://doi.org/10.1007/s10461-020-02973-4.

Chen, Y., Chen, K. & Kalichman, S.C. (2017). Barriers to HIV Medication Adherence as a Function of Regimen Simplification. Annals of Behavioral Medicine 51 (1) 67-78.

Fernandez, C. & van Halsema, C.L. (2019). Evaluating cabotegravir/rilpivirine long-acting, injectable in the treatment of HIV infection: emerging data and therapeutic potential. HIV/AIDS (Auckland, N.Z.) 11, 179-192.

Simoni, J.M., Beima-Sofie, K., Mohamed, Z.H., Christodoulou, J., Tapia, K., Graham, S.M., Ho, R. & Collier, A.C. (2019). Long-Acting Injectable Antiretroviral Treatment Acceptability and Preferences: A Qualitative Study Among US Providers, Adults Living with HIV, and Parents of Youth Living with HIV. AIDS Patient Care & STDS 33 (3) 104-111.

Simoni, J.M., Tapia, K., Lee, S.J., Graham, S.M., Beima-Sofie, K., Mohamed, Z.H., Christodoulou, J., Ho, R. & Collier, A.C. (2020). A Conjoint Analysis of the Acceptability of Targeted Long-Acting Injectable Antiretroviral Therapy Among Persons Living with HIV in the U.S. AIDS and Behavior 24 (4) 1226-1236.

Benning, L., Mantsios, A., Kerrigan, D., Coleman, J.S., Golub, E., Blackstock, O., Konkle-Parker, D., Philbin, M., Sheth, A., Adimora, A.A., Cohen, M.H., Seidman, D., Milam, J., Kassaye, S.G., Taylor, T. & Murray, M. (2020). Examining adherence barriers among women with HIV to tailor outreach for long-acting injectable antiretroviral therapy. BMC Women's Health 20, 152.

Dandachi, D.D, Dang, B.N., Lucari, B., Swindells, S. & Giordano, T.P. (2020). Acceptability and preferences for long-acting antiretroviral formulations among people with HIV infection. AIDS Care 14, 1-9.

Mantsios, A., Murray, M., Karver, T.S., Davis, W., Margolis, D., Kumar, P., Swindells, S., Bredeek, U.F., García del Toro, M., Gasalla, M.G., García, R.R., Antela, A., Hudson, K., Griffith, S. & Kerrigan, D. (2020). Efficacy and Freedom: Patient Experiences with the Transition from Daily Oral to Long-Acting Injectable Antiretroviral Therapy to Treat HIV in the Context of Phase 3 Trials. AIDS and Behaviour. Available at: https://doi.org/10.1007/s10461-020-02918-x.

Mantsios, A., Murray, M., Karver, T.S., Davis, W., Margolis, D., Kumar, P., Swindells, S., Bredeek, U.F., Deltoro, M. G., García, R.R., Antela, A., Garris, C., Shaefer, M., Gomis, S.C., Bernáldez, M.P. & Kerrigan, D. (2020) “I feel empowered”: women’s perspectives on and experiences with long-acting injectable antiretroviral therapy in the USA and Spain. Culture, Health & Sexuality. Available at: https://www.tandfonline.com/doi/full/10.1080/13691058.2020.1752397.

Balta, A., Soon, J. & Morton, R. (2020). Person-Centred Healthcare versus Patient Centricity - what is the difference and how are pharmaceutical companies aiming to secure internal representation of the patient voice? European Journal for Person Centered Healthcare 8 (3) 277-281.

Loughlin, M. (2020). Person Centered Care: Advanced Philosophical Perspectives. European Journal for Person Centered Healthcare 8 (1) 20-33.

Asbridge, J.E. (2020). Progress in the conceptual understanding of person-centered health and social care. ‘Person Centered Care: Advanced Philosophical Perspectives’. Loughlin, M., & Miles, A. (Eds.). London: Aesculapius Medical Press. European Journal for Person Centered Healthcare 8 (1) 17-19.




DOI: http://dx.doi.org/10.5750/ejpch.v8i3.1913

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