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Patient-centered visualization on supporting patients’ decision-making

Young Ji Lee, Cindy Bryce, Sandeep Jain, Jennifer Kraschnewski, Kathleen McTigue


Objective: To develop and validate a patient-centered visualization approach to support decision-making by patients who are choosing between two hypothetic therapeutic options.

Methods: Infographics that contrast two hypothetical drugs, Drug A (low benefit/low risk) and Drug B (high benefit/high risk), were developed based on the input of the clinicians and patients. We adopted a crowdsourcing approach to test the association of a stakeholder-informed infographic, versus text-based educational information, with audience understanding of the risks and benefits of therapeutic options and with decision-making concerning a particular therapeutic option.

Results: The low benefit/low risk drug was consistently preferred over high benefit/high risk. The importance that people placed on potential benefits was consistently associated with medication choice. Perceived importance of medication harms was associated with medication choice only among low-risk patients. Information display (textual versus infographic) and user literacy were not associated with medication choice.

Conclusion: This study demonstrated that patient-centered infographics can be developed using participatory design to support patient decision-making process. The potential benefits of a drug was the most consistent predictor of medication choice in the study.

Practice Implications: Participatory design and crowdsourcing demonstrates promise to facilitate the participatory design of educational materials necessary for shared-decision making.


Crowdsourcing, data visualization, decision support, educational information, focus groups, health literacy, participatory design, participatory research, patient-centered care, person-centered healthcare, shared decision-making

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