Open Access Open Access  Restricted Access Subscription Access

Person-centered health policy in the US: the case of the Patient-Centered Outcomes Research Institute (PCORI)

Sandra Tanenbaum

Abstract


The Patient-Centered Outcomes Research Institute, known as PCORI, was created by the U.S. healthcare reform legislation of 2010. The Affordable Care Act (ACA), sometimes referred to as “Obamacare,” provided for a public-private institute concerned primarily with funding and guiding comparative effectiveness research. Through a uniquely American blend of anti-statist ideology, corporate interest and disability activism, the determination of comparative effectiveness would also be tasked with patient-centeredness, a concept which PCORI has defined and operationalized. This represents a step toward person-centered healthcare, but unresolved issues of true personalization remain.


Keywords


Affordable Care Act (ACA), American Association of Retired Persons (AARP), evidence-based medicine, Medicare, Obamacare, Partnership for Improving Patient Care (PIPC), Patient-Centered Outcomes Research Institute (PCORI), person-centered health policy

Full Text:

PDF

References


Wennberg, J.E. (2010). Tracking Medicine: A Researcher’s Quest to Understand Health Care. New York: Oxford University Press.

Health Policy Official, State of Oregon. (2011). Remarks at the Third Annual Comparative Effectiveness Summit, Washington, D.C., October, 2011.

Clancy, C.M. (2007). Testimony before the Committee on Ways and Means, the Subcommittee on Health, U.S. House of Representatives, June 12, 2007.

Lizza, R. (2009). Money talks: Can Peter Orszag keep the President’s goals economically viable? New Yorker 85 (12) 50-59.

American College of Physicians. (2008). Information on cost-effectiveness: An essential product of a national comparative effectiveness program. Annals of Internal Medicine 148, 956-961.

Major medical groups back comp effectiveness legislation. (2009). Kaiser Health News, June 29. www.kaiserhealthnews.org/Daily-Reports/2009/June/29/Comp-Effectiveness.aspx (accessed June 29, 2009).

Avorn, J. (2010). Debate about funding comparative-effectiveness research. New England Journal of Medicine 360, 1927-1929.

Wilkerson, J. (2009). Panels at odds on HHS role in comparative effectiveness institute. Inside Health Policy, October 2, 2009.

Coelho, T. (2010). A patient advocate’s perspective on patient-centered comparative effectiveness research. Health Affairs 29 (10) 1885-1890.

PCORI. (2015). Research and results. www.pcori.org/research-results (accessed May 20, 2015).

Washington, A.E. & Lipstein, S.H. 2011. The Patient-Centered Outcomes Research Institute - promoting better information, decisions, and health. New England Journal of Medicine 365 (15) e31.

PCORI. (2013). How we’re funded. www.pcori.org/about-us/annual-reports-and-financials/how-were-funded (accessed May 18, 2015).

Selby, J.V. & Lipstein, S.H. (2014). PCORI at 3 years - progress, lessons, plans. New England Journal of Medicine 370 (7) 592-595.

Hickam, D., Totten, A., Berg, A. et al., eds. (2013). The PCORI Methodology Report. www.pcori.org/research-results/research-methodology/pcori-methodology-report (accessed May 21, 2015).

Tunis, S.R., Stryker, D.B. & Clancy, C.M. (2003). Practical clinical trials: enhancing the value of clinical research for decision making in health and clinical policy. Journal of the American Medical Association 290 (12) 1624-1632.

PCORI. (2015). Large pragmatic studies to evaluate patient-centered outcomes - Spring 2015 cycle. www.pcori.org/announcement/large-pragmatic-studies-evaluate-patient-centered-outcomes (accessed May 21, 2015).

Gabler, N.B., Duan, N., Liao, D., Elmore, J.G., Ganiats, T.G. & Kravitz, R.L. (2009). Dealing with heterogeneity of treatment effects: is the literature up to the challenge? Trials 10, 43.

PCORI. (2015). Assessing and Reporting Heterogeneity of Treatment Effect in Clinical Trials. www.pcori.org/research-results/2012/assessing-and-reporting-heterogeneity-treatment-effect-clinical-trials (accessed May 22, 2015).

Sussman, J.B., Kent, D.M., Nelson, J.P. & Hayward, R.A. (2015). Improving diabetes prevention with benefit based tailored treatment: risk based reanalysis of diabetes prevention program. British Medical Journal 350, h454.

U.S. Centers for Medicare and Medicaid Services (CMS). (2014). HCAHPS: Patients’ Perspectives of Care Survey. www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/HospitalQualityInits/HospitalHCAHPS.html (accessed May 24, 2015).




DOI: http://dx.doi.org/10.5750/ejpch.v4i2.1068

Refbacks

  • There are currently no refbacks.